Uniting for Rare Diseases: Conference Sets the Stage for a European Action Plan
| Warsaw (Poland), 10 April 2025
The TEN section, under the auspices of the Polish Presidency of the EU Council and in collaboration with the Polish Ministry of Health and the Medical University of Warsaw, organised a conference on Towards an EU action plan on rare diseases: national plans and European cooperation. The event brought together European, national and local civil society organisations, along with leading professionals, academics, researchers and representatives from EU institutions.
The conference featured 350 participants, nearly 1,000 online viewers, 30 speakers, 18 EESC members, 2 Members of the European Parliament, and several European Commission speakers, including a video message from Commissioner Várhelyi. Our stakeholder community has grown stronger and more aligned with our goal of developing a European Action Plan for rare diseases, with clear and measurable objectives. This will enhance the rare disease pathway and foster European collaboration in this crucial area.
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